Association for Inherited Cardiac Conditions
WELCOME
The Association for Inherited Cardiac Conditions (AICC) is the national body for healthcare professionals managing patients and their families with genetic heart disease.
These inherited cardiac conditions (ICCs) can affect:
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the heart muscle (cardiomyopathies)
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the heart’s rhythm and electrical system (ion channel disorders)
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major blood vessels (aortopathies)
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skeletal muscle as well as heart muscle (neuromuscular disorders)
These conditions can affect all ages, can be difficult to diagnose, can run in families and can affect quality of life and sometimes be associated with serious complications including sudden death. Fortunately, the scientific community is working extremely hard to improve our understanding and our ability to treat these conditions and this field is continuously evolving.
The AICC is a membership organisation that provides a forum in which healthcare professionals can meet, learn, educate, collaborate and ultimately work towards providing the very highest level of healthcare to our patients.
This website combines both:
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public facing information
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resources for AICC members
The portal provides a unique resource of educational material, centred around our annual conferences and highlight sessions, and training resources as well as policy documents and key clinical guidelines. We would encourage any healthcare professionals involved in managing patients with ICCs or interested in learning more, to consider becoming an AICC member. One of our key roles is to represent the healthcare community in this field at a national level, and the wider the membership, the stronger this representation becomes.
Dr Stephen Page
President Association for Inherited Cardiac Conditions
Save the Date for AICC 2025
A huge thank you to everyone who joined us for AICC 2024, we hope you enjoyed the conference! We would love to hear your thoughts and feedback so that we can continue to improve.
Certificates of attendance will be provided on receipt of your completed feedback form
Please join us for the 2025 national conference, which will take place at the Minster Building London EC3, from 11th-12th December 2025
Upcoming Webinars
The Rare Disease Notebook Series
Which includes:
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Thurs, 20 March 2025, 12:00-13:00 – NHS and Coronial Sudden Unexpected Death project: The story so far
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Wed, 23 April 2025, 13:00-14:00 – Hidden in heart failure: Inherited cardiac conditions
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Wed, 21 May 2025, 13:00-14:00 – Inherited aortic conditions
The National Child Mortality Database Webinar - New Pathway for Investigating Inherited Cardiac Conditions and how this relates to SUDIC taking place on Thursday 8th May 10am-11:15am
AICC Council Elections
2025
We are delighted to announce that David Walker and Huafrin Kotwal have joined the AICC Council as newly appointed members, filling the Genetic Counsellor role as a joint appointment.
Two nurse specialist roles will be advertised in May for the July election, details to follow.
About the Association of Inherited Cardiovascular Conditions (AICC)
We aim to provide consistent, top quality education and training, advice on management and best practice, as well as acting as a forum for data collection, audit and collaborative research. Membership is open to clinicians, nurses, counsellors, scientists and professions allied to medicine, as well as to persons from organisations and charities involved in support of such families.
Management of inherited cardiac conditions is currently one of the most rapidly evolving areas in cardiology. The last decade has seen a major change in our recognition of these conditions from apparently rare isolated disorders, to a group which collectively are common and which may be associated with the tragedy of unnecessary sudden death.
Contact: aicc@bcs.com